Joining a research study is a personal decision and is your choice.
As a research participant, you have the right to:
- be treated in a caring and polite way
- have enough time to decide whether or not to take part in the research study, and to make that decision without pressure from study personnel
- refuse to join the study, or to stop participating at any time
- be informed of the study purpose, what you are being asked to do, and what will happen
- be told about reasonably foreseeable risk
- be told about possible benefits of participation
- be told about any costs you may incur and whether you will be compensated
- be told who will have access to the information collected about you
- be provided a contact who can answer questions about the research, research-related injuries, and your rights as a research participant
If the study involves treatment or therapy:
- be told about other non-research treatment choices available to you
- be told where treatment is available should you have a research-related injury, and who will pay for research-related treatment
Questions to Ask Before Paerticipating in a Research Study
- Why is the research being done?
- What will you have to do?
- Where will you have to go to participate?
- What are risks of participation?
- What are the benefits of participation?
- How will your privacy and identifiable information be protected?
- Will your participation cost you anything?
- Will you be compensated for your participation?
- Who can you contact with questions or concerns?